Lung Cancer: A Lonely Place

Ever since I was diagnosed nearly 10 years ago, my life has gained a sense of surrealism. I am not exactly sure how to be. There are few guidelines for those of us who are faced with our own death in such a concrete way. Even before my diagnosis, as the daughter of a holocaust survivor and a mother who died within four months of her lung cancer diagnosis, I already understood the urgency of enjoying life to the fullest.

I worked hard and played harder. As a doctor, I never felt the need to measure my worth by my income. I refused to work like crazy, to be seduced by the money I could make by squeezing more and more patients into my schedule. I passionately traveled the world, absorbed different cultures and tried to bring a sense of connection to whatever room I entered.

Now, when I head out the door, I know that friends and acquaintances will scrutinize me, looking for signs that things are changing. Does she look tired? Has she lost weight? How are you doing?  Then they can report to others that they saw me and give their analysis.anne looking into future

I am 58 and surrounded by people complaining about this and that; peri-menopausal woes in particular, insomnia, weight gain, back pain, wrinkles. Admittedly I have little tolerance for those benign concerns these days. As time since my diagnosis grows longer, I may also join them in worrying about these things, thinking at times “hey, I’ve lived this long, maybe I should try botox?” Stress about aging is a lovely, welcome luxury. Nothing compares to a spot on a chest x-ray, a lump in the breast, a suspicious mole.

Lung cancer is a tough one. It isn’t breast cancer with a massive support system, pink ribbons, tons of research money. Is it because it’s a boob thing? When it comes to lung cancer patients, survivors are few. Early detection and treatment options are not even close to those available for breast cancer patients. Almost everyone knows someone who died the painful, horrifying death that is associated with lung cancer. In Dr. Christine Northup’s best selling book on women’s health, lung cancer does not even appear in the index, while it is the number-one cancer killer among women  – more than all of the reproductive cancers combined. The number is rising, particularly among non-smokers. I wrote a letter to Dr. Northup, noting this serious omission, but predictably never received a response.

Our society is built on planning; we are penalized with high fares if we decide last minute to hop on a plane. We work and work to save for the future. We live with the delusion that we have the luxury of putting things off. When I retire, when the children leave, when I can get a bigger pension, whatever it is. ‘Save the Date’ notices appear more than 6 months before an event. All I can say is that I don’t buy green bananas.

Since my diagnosis, I understand that the future is now. I wake up every morning and first try to shake off the post-traumatic thoughts of my illness and months of treatment. I know each day is a challenge, trying to be ‘normal’ when nothing is normal anymore. I am grateful to wake up, to delight in the achievements of my children, to continue to explore the world as long as I can. I feel empowered to call others out on actions I find hurtful. I have a stronger voice.

I can begin my lifelong dream to write, and although I never imagined I’d be writing about this, I may never write about it again. This marks the start of that dream.

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4 comments

  1. Hi Anne
    Such a heartfelt open honest article. Thank you for daring to share so much of yourself. Our time getting to know each other was miniscule so I feel blessed to have this extra portal and opportunity to understand you. I can’t begin to imagine what you’ve been through or what it is like to wake each day with that cloud. No wonder you are so passionate about the things you love. I am reminded of this quote:
    “The flame that burns brightest lasts half as long”
    though my wish for you is a life as long and passionate as your Dad’s. You seem to come from extremely tenacious stock.
    More importantly you are a lover of life willing to share and inspire. Who knows how many hearts you will touch. May your story ripple out far and wide to reach those in need.
    Love and light
    Sandy

    1. Thanks Sandy. This blog will get very personal, I’m warning you!
      Praying for health for me, us, our kids, our friends, that is all that really matters. It has been quite the journey…Happy HEALTHY new year to you all xoxox

  2. Happened on this entry after reading the new posts you mentioned on FB. You are amazing! I can still remember the deviation, sadness, fear, love, and hopefulness that hung in the air during those early years of your diagnosis. It fades slightly with each year that passes and is continuously being replaced by joy that you are healthy and living life to its fullest. You and your family are often in my thoughts, even after all these years, and I only wish the best for you all! <3

    1. Hi Shannon,
      I wish I could say that time heals but with every 3 month checkup there is an indescribable angst and fear and ptsd. You witnessed it and were such a comfort at that time for all of us. You will always be family to us no matter how much time passes. Sounds like you’re doing great and please keep reading, not all the posts will be such downers :-/ love you

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